In which the main arteries supplying the brain with blood narrow and collateral vessels called “moyamoya vessels” develop.
In which the main arteries supplying the brain with blood narrow and collateral vessels called “moyamoya vessels” develop.
The Moyamoya Foundation has partnered with Sanford Research to host our patient registry through the CoRDS Rare Disease Registry. This robust and secure platform ensures the safe collection and management of data, enabling seamless sharing with researchers. Through this collaboration, we aim to advance research and improve outcomes for Moyamoya patients.
Used the link below to enroll and complete the CoRDS patient registry questionnaire online.
Catherine Stratton and Sophia D. Kocher from Moyamoya Foundation contributed to this published research paper
A resource for Moyamoya patients and their families that shares the personal experiences of Moyamoya patients. This motivational book helps those diagnosed with this rare disease recognize that there is hope and that they are not alone.
