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Patient/Family support working with Clinical social workers

Sponsor/Participant - IPSO 2024 Congress in Toronto

Thank You Letter from the International Pediatric Stroke Organization

Met with many pediatric neurologist, neurosurgeon, neuropsychologist, nurses and others from around the world March 22-24, at the IPSO 2024 Congress in Toronto, Canada.

sponsor - 2nd Annual Strokes for Stroke golf tournament

presented - American academy of neurology

AAN Annual Meeting - April 2023 - Boston MA

Image of Abstract Details paper

sponsor - Strokes for Stroke golf tournament - Aug 2022

Sponsor - MOYAMOYA FAMILY DAY - BOSTON CHILDREN'S HOSPITAL - may 2022

Sophia Kocher, Samantha Houle, Dr. Edward Smith, and Lisa Deck (left to right)
WATCH A RELAY OF OUR MAY 6, 2022

FACEBOOK LIVE VIRTUAL EVENT

Video replay

SEMINAR ON MOYAMOYA DISEASE FOR PATIENTS AND PROVIDERS

May 6, 2021 - Hybrid Event Live Streamed - Boston MA


Medical information, patient stories, support and networking event moderated by Dr. David M. Greer, MD from Boston Medical Center featuring Dr. Christopher S. Ogilvy, MD from Beth Israel Deaconess Medical Center, Dr. Edward R. Smith, MD from Boston Children's Hospital, Boston Medical Center and patients Corey Repucci, Samantha Houle and Lisa Bayha Deck.


YouTube Video Link:

 https://www.youtube.com/watch?v=KWnwYAej_jc&t=9s

The World of Rare Disease: Moyamoya Disease

The World of Rare Disease - March 1, 2021


In this episode host, Lisa Deck, interviews two patients with Moyamoya disease: Sam Houle and Catherine Stratton. They are also joined by Sam's father, Dean Houle, to discuss Moyamoya disease and the patient experience.


The World of Rare Disease - Moyamoya Foundation Co Facebook Live full interview

Zoom Webinar Video

Lenox Hill Hospital Neurosurgeons Coronavirus And The Brain Webinar

[Click the LINK above to view] On May 6th World Moyamoya Day,  honored patients affected by this rare neurovascular disease with Board President of Moyamoya Foundation  Dean Houle.

Making a difference

State of CT Officially Recognizes Moyamoya Awareness!

[Click Image Above] to view Senate Bill No. 1091

It's official in Connecticut as of July 1, 2019. Moyamoya Awareness Day Is on May 6th of each year, to align with World Moyamoya Day!

Moyamoya Foundation Co is a qualified 501(c)(3) charitable non-profit foundation.

  

Disclaimer: "We are not medical professionals, and this website is not intended to provide medical advice. Its content is for informational purposes only. Always consult with your physician or other qualified healthcare professional regarding any medical concerns or conditions, and refrain from making medical decisions solely based on information obtained from this website.". 


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