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    • Home
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    • Financial Disclosure
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MoyaMoya Foundation
  • Home
  • Inspiration
  • Resources
  • Donate
  • Impact
  • Registry
  • Calendar
  • The Board
  • Privacy Policy
  • Financial Disclosure
  • Merchandise
  • Contact Us

sponsor - Strokes for Stroke golf tournament - Aug 2022

Sponsor - MOYAMOYA FAMILY DAY - BOSTON CHILDREN'S HOSPITAL - may 2022

Sophia Kocher, Samantha Houle, Dr. Edward Smith, and Lisa Deck (left to right)
WATCH A RELAY OF OUR MAY 6, 2022

FACEBOOK LIVE VIRTUAL EVENT

Video replay

SEMINAR ON MOYAMOYA DISEASE FOR PATIENTS AND PROVIDERS

May 6, 2021 - Hybrid Event Live Streamed - Boston MA


Medical information, patient stories, support and networking event moderated by Dr. David M. Greer, MD from Boston Medical Center featuring Dr. Christopher S. Ogilvy, MD from Beth Israel Deaconess Medical Center, Dr. Edward R. Smith, MD from Boston Children's Hospital, Boston Medical Center and patients Corey Repucci, Samantha Houle and Lisa Bayha Deck.


YouTube Video Link:

 https://www.youtube.com/watch?v=KWnwYAej_jc&t=9s

The World of Rare Disease: Moyamoya Disease

The World of Rare Disease - March 1, 2021


In this episode host, Lisa Deck, interviews two patients with Moyamoya disease: Sam Houle and Catherine Stratton. They are also joined by Sam's father, Dean Houle, to discuss Moyamoya disease and the patient experience.


The World of Rare Disease - Moyamoya Foundation Co Facebook Live full interview

Zoom Webinar Video

Lenox Hill Hospital Neurosurgeons Coronavirus And The Brain Webinar

[Click the LINK above to view] On May 6th World Moyamoya Day,  honored patients affected by this rare neurovascular disease with Board President of Moyamoya Foundation  Dean Houle.

Making a difference

State of CT Officially Recognizes Moyamoya Awareness!

[Click Image Above] to view Senate Bill No. 1091

It's official in Connecticut as of July 1, 2019. Moyamoya Awareness Day Is on May 6th of each year, to align with World Moyamoya Day!

Moyamoya Foundation Co is a qualified 501(c)(3) charitable non-profit foundation.

  

We are not medical professionals and this website is not designed to and does not provided medical advice. 

Always seek advice from your physician or other qualified health care professional. 


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