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MOYAMOYA DISEASE

A rare, progressive disease in which the main arteries supplying the brain with blood (the internal carotid arteries and intracranial branches) narrow and collateral vessels called “moyamoya vessels” develop. Patients are at increased risk for stroke. Currently, the main form of treatment is surgical revascularization which cannot pause or reverse the narrowing, but can help to improve blood flow to the brain by directing it thorough a different route. The name “moyamoya” comes from the Japanese term for “something hazy like a puff of smoke” given the hazy appearance of the arteries when it was first observed on cerebral angiography.

INFORMATION ABOUT MOYAMOYA DISEASE

Click above to go to NINDS website

Mayo Clinic logo and link to moyamoya disease

Click above to go to Mayo Clinic website

Johns Hopkins logo and link to moyamoya disease

Click above to go to Johns Hopkins website

Click above to go to Child Neurology Foundation


Boston Children's  Dr. Edward Robert Smith Moyamoya disease diagnosis

Mayo Clinic's  Dr. Bernard Bendok

Moyamoya Disease Treatment

Hospitals with MoyaMoya Programs & Centers

Click above to go to website:

Boston Children's Hospital - Boston, MA 02115

Click above to go to website:

Dartmouth-Hitchcock -Lebanon, NH 03756

Stanford Health Care Logo

Click above to go to website:

Stanford Neuroscience Health Center 

Palo Alto, CA 94304

Click above to go to website:

Lenox Hill Hospital - New York, NY 10075

Mayo Clinic logo and link to moyamoya disease

Click above to go to website:

Arizona, Florida and Minnesota

BIDMC logo and link to moyamoya center

Click above to go to website:

Beth Israel Lahey Health - Boston, MA 02215

Columbia University Medical Center

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Columbia University Medical Center 

New York, NY 10032

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Cincinnati Childrens's Hospital Medical Center

Cincinnati, Ohio 45229

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Duke University Health System

Durham, NC 27710-4699

Providence Logo

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The Oregon Clinic - Neurosurgery & Spine East

Portland, OR 97213

NYU Langone Health Logo

Click above to go to website:

NYU Langone Health

New York, NY 10016

Link to FINDEXPERTMD.com website

Based on Scientific Publications, NIH Grants, Clinical Trial
Moyamoya Disease Doctors

Support Groups for Moyamoya

Moyamoya support groups
Mayo Clinic - Brain and Nervous System
Mayo clinic - Stroke & Cerebrovascular Diseases

Moyamoya Facebook GROUPS

WORLD MOYAMOYA ALLIANCE
Moyamoya Families
MoyaMoya Disease (rare brain disease)
MoyaMoya
Moyamoya “look it up”
MoyaMoya Group
cure for moya-moya group
Moyamoya Foundation

Moyamoya Foundation Co is a qualified 501(c)(3) charitable non-profit foundation.

  

We are not medical professionals and this website is not designed to and does not provided medical advice. 

Always seek advice from your physician or other qualified health care professional. 


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