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MOYAMOYA DISEASE

A rare, progressive disease in which the main arteries supplying the brain with blood (the internal carotid arteries and intracranial branches) narrow and collateral vessels called “moyamoya vessels” develop. Patients are at increased risk for stroke. Currently, the main form of treatment is surgical revascularization which cannot pause or reverse the narrowing, but can help to improve blood flow to the brain by directing it thorough a different route. The name “moyamoya” comes from the Japanese term for “something hazy like a puff of smoke” given the hazy appearance of the arteries when it was first observed on cerebral angiography.


Disclaimer:  "The moyamoya resources provided below are for informational purposes only and do not constitute any specific recommendations. It is advisable to conduct thorough research, ask questions, and seek second opinions as needed before making any medical decisions based on information provided to you."

INFORMATION ABOUT MOYAMOYA DISEASE

Mayo Clinic logo and link to moyamoya disease

Click above to go to Mayo Clinic website

NIH logo and link

Click above to go to NINDS website

Child Neurology Foundation logo and link

Click above to go to Child Neurology Foundation


Boston Children's  Dr. Edward Robert Smith Moyamoya disease diagnosis

Mayo Clinic's  Dr. Bernard Bendok

Moyamoya Disease Treatment

Hospitals with MoyaMoya Programs & Centers

Boston Children's Hospital logo and link

Click above to go to website:

Boston Children's Hospital - Boston, MA 02115

Dartmouth Hitchcock logo and link

Click above to go to website:

Dartmouth-Hitchcock -Lebanon, NH 03756

Stanford Health Care logo and link

Click above to go to website:

Stanford Neuroscience Health Center 

Palo Alto, CA 94304

Lenox Hill Hospital logo and link

Click above to go to website:

Lenox Hill Hospital - New York, NY 10075

Mayo Clinic logo and link

Click above to go to website:

Arizona, Florida and Minnesota

BethIsrael Deaconess Medical Center logo and link to moyamoya center

Click above to go to website:

Beth Israel Lahey Health - Boston, MA 02215

Columbia University Medical Center logo and link

Click above to go to website:

Columbia University Medical Center 

New York, NY 10032

Cincinnati Childrens logo and link

Click above to go to website:

Cincinnati Childrens's Hospital Medical Center

Cincinnati, Ohio 45229

Duke University Health System logo and link

Click above to go to website:

Duke University Health System

Durham, NC 27710-4699

The Oregon Clinic logo and link

Click above to go to website:

The Oregon Clinic - Neurosurgery & Spine East

Portland, OR 97213

NYU Langone Health Logo

Click above to go to website:

NYU Langone Health

New York, NY 10016

Hartford HealthCare - Hartford Hospital Logo

Click above to go to website:

Hartford HealthCare - Ayer Neuroscience Institute

Hartford, CT 06106

Penn State Health Hospital logo and link

Click above to go to website:

Hershey Medical Center

Hershey, PA 17033

UCLA Health Logo

Click above to go to website:

UCLA Health

Los Angeles, CA 90095

Johns Hopkins logo and link

Click above to go to website:

Johns Hopkins

Baltimore, MD 21287

UW Medicine Logo

Click above to go to website:

UW Medicine

Seattle, WA 98104

UofL Health logo and link

Click above to go to website:

UofL Health – Brain & Spine Institute

Louisville, KY 40202

UCSF logo and link

Click above to go to website:

UCSF Health

San Francisco, CA 94143

Link to FINDEXPERTMD.com website

Based on Scientific Publications, NIH Grants, Clinical Trial
Moyamoya Disease Doctors

Looking for a Free Flight?

Angel Flight East logo

Angel Flight East - Mission Statement

To provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times.

Go To Angel flight east Website

Links to moyamoya Support Groups

Picture of support group meeting
Mayo Clinic - Brain and Nervous System
Mayo clinic - Stroke & Cerebrovascular Diseases

links to Moyamoya Facebook GROUPS

WORLD MOYAMOYA ALLIANCE
Moyamoya Families
MoyaMoya Disease (rare brain disease)
MoyaMoya Group - Facebook Image
MoyaMoya
Moyamoya Look It Up Facebook image
Moyamoya “look it up”
MoyaMoya Group
cure for moya-moya group
Moyamoya Foundation

SEE DOWN LOADABLE FILES BELOW

social media frame downloads

Social Media Frame Instructions (pdf)

Download

Moyamoya Warrior (png)

Download

Moyamoya Advocate (png)

Download

Moyamoya Awareness (png)

Download

Moyamoya Research (png)

Download

Rear Desease Day (png)

Download

Moyamoya Foundation Co is a qualified 501(c)(3) charitable non-profit foundation.

  

Disclaimer: "We are not medical professionals, and this website is not intended to provide medical advice. Its content is for informational purposes only. Always consult with your physician or other qualified healthcare professional regarding any medical concerns or conditions, and refrain from making medical decisions solely based on information obtained from this website.". 


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