July/August 2023 Update - Currently piloting registry with small select group of participants
December 2022 Update - Internal Review Board (IRB) filing has been approved
January 2023 Update - We are now in the final stages of testing
April 2023 Update - Finalizing partner agreements and held first meeting of Medical Review Board (MAB)
On May 6th 2022, Catherine Stratton, the Moyamoya Foundation Research Committee Chairperson announced the creation of the "Global Moyamoya Patient Registry".
Please watch the video to learn more and how you can get involved.
Use the 'CONTACT US' link at the bottom of this page to request to be notified when the registry opens.
Moyamoya Foundation Co is a qualified 501(c)(3) charitable non-profit foundation.
We are not medical professionals and this website is not designed to and does not provided medical advice.
Always seek advice from your physician or other qualified health care professional.
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